Interview – Marsha G. of Florida.
Let me start by saying that Tinea-Versicolor.net has been blessed with wonderful contributions from our readership and for that, we are truly thankful. This website was founded with the purpose of providing useful information to those afflicted with Tinea Versicolor. One of the ways in which we do that is by discovering and receiving new and insightful information from you…our readers…and then sharing it with others in hope that they might benefit.
This week, I had the privilege of interviewing Marsha G, a 65 year old retired teacher and retail sales manager from Florida who, unlike most of us living with Tinea Versicolor, developed the skin condition later in life. Marsha’s case is interesting in that it illustrates the complex nature of this skin disorder. She’s been kind enough to share her story with us in hopes that it might help someone else in their battle against this unruly dermabeast.
TV.Net – When did you first discover that you had Tinea Versicolor?
Marsha – I first noticed the spots about 10 years ago, but only recently did I learn what it was. I had always called it the “mystery illness” because my doctors couldn’t figure out what it was. They were general practitioners and not experts in dermatology.
TV.Net – How do you think you contracted TV?
Marsha – I used to do a lot of gardening, in a little courtyard overhung with southern oaks and long-needled pines. The years of compost were great soil, but evidently, they also harbored molds and fungi, which eventually infected me. I got extremely sick.
TV.Net – In your email to Tony, you mentioned that you were having a terrible time right now with Tinea…that you have been on various medications that are making you sick and uncomfortable. Are those issues related to the misdiagnosis of your TV?
Marsha – Well, that is the sad part of my story. Many doctors and antibiotics later, I am finally being treated for a systemic fungal infection. That diagnosis was made by my allergist, who told me I was allergic to yeasts. Unfortunately, he put me on a steroid inhaler…one known to give some people who use it Candida Albicans (a yeast that lives in the human body and can cause a variety of mental and physical health conditions when overgrowth occurs). Now I have many types of fungus and will be seeing a top dermatologist this month to see what can be done.
TV.Net – So no official diagnosis has been made yet?
Marsha – I guess you could say it’s still being made, although the Tinea Versicolor on my skin is obvious to me after seeing pictures of it on others.
TV.Net – Where are you seeing the TV appear on your body?
Marsha – On my face, specifically my cheeks and forehead, and on my neck and chest. The blotches and spots on my neck and chest get really red and I usually apply makeup there to make it less obvious.
TV.Net – So you try to hide it from others? Has it had an affect on your self-esteem or life as a whole?
Marsha – I do try to hide it, but I’m also honest about it…like when I go to a spa or someplace like that. I’ve been turned away from a spa or two for fear that my skin condition is contagious. Otherwise, I’ll cover it with clothing as best I can to deter attention from others when I’m out and about, but it does cause relationship issues. I’m a widow and now have a boyfriend. (A laugh) To say he’s concerned about it is an understatement.
TV.Net – Do you still try to go to the spa or gym?
Marsha – That’s another sad thing. I used to go to the spa (Slender Life Spa) and get these special full-body mineral wraps that would keep the Tinea Versicolor from activating, but now I can’t. It’s really frustrating to find something that helps control it only to be turned away at the door because of it.
TV.Net – When do you notice your Tinea Versicolor the most?
Marsha – Anytime that I’m in the sun…particularly from May to October. The sun causes it to go crazy and itch. I can’t stand it when it itches!
TV.Net – Has it affected your lifestyle at all?
Marsha – I used to be active…swimming, going to the beach, gardening…but because of the Tinea, my activity level has been greatly reduced…to almost nothing. The funny thing is that I moved here many years ago for exactly that reason…the tropical climate and opportunities for outdoor activity. Sadly, I now have to avoid the Florida sun and humidity as much as possible.
TV.Net – How do you mange your Tinea?
Marsha – Before I knew what this skin disorder even was, I was properly bathing in coconut oil and using exfoliating gloves. I also took two Pro-Biotics and six Capryl per day. I avoid the sun and humidity as much as possible, and even have a sunshade in my car that can be rotated front to side to keep the sun off of me. As I also have a chronic candida infection vaginally, I have lived a low-carb lifestyle to control that. I’ll send you a list of things I’ve tried that have worked and those that haven’t worked. (See list below)
TV.Net – Marsha, it’s been a pleasure talking with you. Thank you for sharing your experience with Tinea Versicolor. I know our readers will benefit greatly from story.
Marsha – If I can help just one other person deal with this problem, I will be very happy. I’ll send you an update after I see the dermatologist.
What follows is a list of things that have worked and not worked for Marsha. Please keep in mind that Tinea Versicolor is a determined skin fungus and what may work for some may not work for others…and vice versa.
THINGS THAT HELP:
ORGANIC PURE EXTRA VIRGIN COCONUT OIL (MOISTURIZER AND COOKING)
COLLAGEN MASKS (SALLY’S, WALGREENS)
COCONUT MILK (UNSWEETENED)
STAY OUT OF SUN, HEAT, HUMIDITY
KEEP HOUSE COOL
WASH CLOTHING AND SHEETS WITH ¼-CUP VINEGAR
GREEK YOGURT- PLAIN (EATEN AND APPLIED)
PROBIOTIC IN BILLIONS (RENEW LIFE VAGINAL SUPPORT, 50 BILLION) X 2 DAILY
CAPRYL (6 DAILY)
LOW CARB LIFESTYLE
GREEN TEA/CINNAMON (ANTIFUNGAL/LOWERS BLOOD SUGAR)
BAKING SODA IN BATH
CLUB SODA APPLIED AND SWISHED IN MOUTH
PALMER’S COCONUT BATH OIL
LOTRAMIN MEDICATED POWDER
SELSUN BLUE 2% (IN BATHWATER)
THINGS THAT HURT:
SELSUN BLUE 2% (TOO STRONG WHEN APPLIED DIRECTLY TO MY SKIN FOR 10 MINUTES FOR 7 DAYS)